MYOTUBULAR MYOPATHY & CENTRONUCLEAR MYOPATHY

Billy Gilman "About things that Matter" (based on the poem of Mattie J.T. Stepanek)

Click the button below to register for the Family Conference.   

Act FAST to take advantage of the Early Bird discount!!

You can now register online for rooms at the Marriott Hotel at George Bush International Airport in Houston, TX, by clicking on the link below:

Click here to register @ the Marriott for the Family Conference 2009 

Schedule of Activities

Friday:

2:00- 4:00pm       Registration

6:00- 6:30pm      Paul Frase, former NFL Linebacker

6:30- 10:00         Meet and Greet/ Food & Beverages

Saturday:

8:00- 9:00am       Breakfast

9:00- 9:15           Dahlia DeLeon, Muscular Dystrophy Association

9:20- 11:00         Dr Alan Beggs, Research/ Elizabeth DeChene,
                              Genetics

11:00- Noon        Dr Christopher Pierson, MTM/CNM Pathology

12:00- 1:00         Lunch

1:00- 2:30           Dr Dowling, Research and Neurology
                                (with parent panel for last 30 minutes)

2:30- 3:00           Break  (with snacks)

3:00- 5:00           Dr Farber, Pulmonology
                                 (with parent panel for last 45 minutes)

6:00- 10:00          Group photo, Dinner/Joey Wells, Slideshow
                                 

Sunday:

8:00- 9:00            Breakfast

9:00- 10:45           Dr Iannoconne, Neurology
                                   (with parent panel for last 30 minutes)

11:00- 11:20         Alison Frase

11:20- 12:00         Extended Break
                                   (for packing and socializing)

12:00- 1:00           Lunch

1:00- 2:00             Discussion/Closing

       

We are doing really well with our fundraising goals, so let's keep going!!!  We are raising money right now to assist families with scholarships that would enable them to get to the conference.
Great  job, everyone! 
Let's keep up the good work!!!