MTM~CNM Family Conference

I co-founded and currently manage our non-profit organization, The Joshua Frase Foundation. This has been my mission for over sixteen years. Before our late son Joshua turned one years old, we established a foundation for our son Joshua and the Joshua's of the world.  Our mission to find treatments for neuromuscular disorders, specifically CNM-MTM. The Joshua Frase Foundation has established global recognition as leader in funding world-renowned research and major scientific advancements that will enhance the lives of thousands of our children.I have been very involved with building and cultivating relationships with major donors, celebrities, scientists and families who will one day benefit from organizationally-funded research.  Most importantly, I am committed in supporting families with children affected by neuromuscular disorders; providing emotional and financial assistance. My goal is to one day find a treatment or a cure for these  children and families. God Bless, Alison