MTM~CNM Family Conference

My grandson Joshua Daniel died at about 10 mos. of age.  He had X-linled MTM.  He was the first child in our family with MTM even though I have several boys in my family, a Son, Nephews, Uncles, Cousins. My youngest daughter is Joshua's Mom, and I think she is also affected by MTM to some extent. She developed physically slowly and has difficulty with her eyes. It is very difficult because we can't find a doctor that knows about MTM close to where she lives, (Vallejo, CA). Any information or suggestions would be welcome.

Karon