MTM~CNM Family Conference

I am a Special Education teacher in Ohio.  I work with students who have Learning Disabilities and love what I do. 

We had a son, named Matthew, who lived for five weeks before he passed away.  He was diagnosed with X-linked MTM.  My husband, Mike, and I continue to learn all about Myotubular Myopathy because we have a daughter and hate the thought that she may have to go through all of the pain that we have endured.