Links
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Myotubular Myopathy Resource Group www.mtmrg.orginformation about MTM and CNM, including family stories/photos.
Posted November 8, 2008 at 7:58 AM -
Joshua Frase Foundation www.joshuafrase.orginformation about MTM and CNM, familiy stories/photos, links to research enrollment, information on fundraising for research, memorials,
Posted November 8, 2008 at 8:02 AM -
Phillips Respironics www.healthcare.philips.com/main/homehealth/respironics.wpdPhillips Respironics sponsored the 2011 MTM-CNM Family Conference in Minneapolis, MN.
Posted August 9, 2011 at 10:31 PM -
Myotubular Trust www.myotubulartrust.orginformation about MTM and CNM, research, fundraising opportunities and ideas
Posted November 8, 2008 at 8:04 AM -
The Information Point for Centronuclear and Myotubular Myopathy www.centronuclear.org.ukinformation about MTM and CNM, links to other MTM and CNM organizations, patient registry, research, memorials, online store,.
Posted November 8, 2008 at 8:39 AM -
Beggs Laboratory at Children's Hospital Boston www.childrenshospital.org/cfapps/research/data_admin/Site1694/mainpageS1694P0.htmlResearch lab in the US currently enrolling patients/families into their research project.
Posted November 11, 2008 at 1:37 PM -
Jacob Berry Ministries www.jacobberryministries.orgJacob Berry is a special young man, born with Myotubular Myopathy, who is on a special mission from God to preach His word throughout the land. This is his ministry webpage.
Posted January 19, 2009 at 7:49 PM -
The story of Nibs. www.joshuafrase.org/PDFs/Nibs.pdfInformation about our miracle dog, Nibs...brought to you from the Joshua Frase Foundation.
Posted July 30, 2011 at 4:21 PM
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