MYOTUBULAR MYOPATHY & CENTRONUCLEAR MYOPATHY
Family Conference Network
Links
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MTM & CNM resources
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Myotubular Myopathy Resource Group www.mtmrg.orginformation about MTM and CNM, including family stories/photos.
Posted at 12:58pm on Sat, Nov 08 2008 -
Joshua Frase Foundation www.joshuafrase.orginformation about MTM and CNM, familiy stories/photos, links to research enrollment, information on fundraising for research, memorials,
Posted at 1:02pm on Sat, Nov 08 2008 -
Myotubular Trust www.myotubulartrust.orginformation about MTM and CNM, research, fundraising opportunities and ideas
Posted at 1:04pm on Sat, Nov 08 2008 -
The Information Point for Centronuclear and Myotubular Myopathy www.centronuclear.org.ukinformation about MTM and CNM, links to other MTM and CNM organizations, patient registry, research, memorials, online store,.
Posted at 1:39pm on Sat, Nov 08 2008 -
Beggs Laboratory at Children's Hospital Boston www.childrenshospital.org/cfapps/research/data_admin/Site1694/mainpageS1694P0.htmlResearch lab in the US currently enrolling patients/families into their research project.
Posted at 6:37pm on Tue, Nov 11 2008 -
Jacob Berry Ministries www.jacobberryministries.orgJacob Berry is a special young man, born with Myotubular Myopathy, who is on a special mission from God to preach His word throughout the land. This is his ministry webpage.
Posted at 12:49am on Tue, Jan 20 2009
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