MYOTUBULAR MYOPATHY & CENTRONUCLEAR MYOPATHY
Family Conference Network
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Let the Fundraising begin!
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Alright! We are off to a great start. Right now we need to begin collecting the funds that are necessary to hold the conference. We need everybody's help! Let's go!!!
And, I am pleased to announce the participation of the Joshua Frase Foundation in helping us put on the conference!
This is all coming together so nicely : )
Connie
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