MYOTUBULAR MYOPATHY & CENTRONUCLEAR MYOPATHY
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Post Conference Update
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The 2009 MTM-CNM Family Conference was definitely a life changing event. There were over 115 people in attendance, representing 31 affected families. It was truly amazing to be gathered there with all of these precious families!! 
The families gathered together, the children played, information was shared, and our lives were touched in an incredible way. I will never forget it!
For those of you who weren't able to attend, the event was webcasted live. If you were not able to participate in the live webcast, it is being archived for future viewing.
The link to watch the live webcast is:
http://video.webcasts.com/events/glow001/31605
It will be ready to view by the end of the day today, August 10, 2009.
Thank you all for your support and participation in this year's event!
Plans are in order to begin organizing next year's event, as we speak. We hope to see you there!!
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