MYOTUBULAR MYOPATHY & CENTRONUCLEAR MYOPATHY

Hi everyone 

For those who do not yet know, active fundraising has begun and the donations are starting to come in.   So far...

-A marathon has been run by the uncle of an affected family member, raising over $500!

-An organization has made a one-thousand dollar donation!

-A couple of local bank employees donated money to the MTMRG!

-A local school's Special Education department took up a collection to benefit the MTMRG!

-An employee at a bank made a contribution to MTMRG and used the Bank's "Matching Funds" program to double the gift to MTMRG!

The Phantom Tea Invitations are at the printer as I type this (the Printer has donated the printing of the invitations!)   As quickly as possible they will be distributed to anyone who would like to participate in this delightful FUNdraiser   

 If we all work together, we will meet our budget goals quickly.  The next step would then be fundraising so we can cut away at family costs like registration fees, etc.     

So far, we have 11 confirmed families who will be attending! Awesome!! 

For the undecided families... I know it can seem daunting, but believe me when I tell you that the hardest part is committing to attend.  Once you have made up your mind to come, the rest of it will work out. 

!'!'! Remember, we are all in this together- if you find a great deal on travel or an easier way to travel, submit it to us and we will include it on the website for all of us to benefit from.  !.!.!

((( Here's a thought:  if all 11 confirmed families raised $500 each through the Phantom Tea, this would raise an additional $5, 500! 
If all 50 families who responded to the survey about this conference raised $500 each through the Phantom Tea, this would raise an additional $25,000! )))

@@@ Anyone interested in helping to plan/organize the conference or  wanting to help out in some way-  we welcome you!  Shoot us an email... mtmfamilyconference@gmail.com or contact us through this website. @@@

~~ Also, anyone who would like to have their family photos added to the slideshow on the home page of the website, make sure to get them sent in by November 15, 2008.  The photos will be gathered and added to the slideshow by November 30, 2008.  PLEASE SEND ALL PHOTOS TO:  kookla_g@yahoo.com   Do NOT send them to the family conference gmail account.  Thank you! ~~

Connie