MTM-CNM Family Connection

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2013 MTM-CNM Family Conference


Date: July 26-28, 2013

Location: Best Western Plus at Mall of America, Bloomington, MN


Agenda


Friday, July 26 

2-4 PM: Arrival, Registration, and Community Connection


Evening Community Social: A casual meet and greet event over dinner Friday for families and our medical professionals.


Saturday, July 27

Morning: Speaking Program.  These scientific presentations will focus on some of the amazing progress that has been made recently towards potential treatments for MTM-CNM.


Afternoon options: Want to share in a medical forum with our researchers? Looking to connect with other parents around everyday issues raising a child or young adult with MTM/CNM? Ready to enjoy an afternoon of activities outside of the hotel? (i.e., the Mall of America, Nickelodeon Park or the Aquarium). Don't want to leave the hotel? Family fun activities will be planned at the hotel as well. 


Evening: Entertainment Night - Families and our medical professionals will enjoy dinner Saturday night while our friends and family are the entertainment. A variety show will be all the rage when your loved one performs their special talent. 


Sunday, July 28 

Morning: Speaking Program continued, with a focus on moving forward as a community toward clinical trials.


Community lunch: We will continue the building our community connections


Afternoon: Keeping Connections - We will come back together following lunch to conclude our weekend and discuss keeping connections moving forward in our community following the conference.


2:00 PM Conference Concludes

 

Throughout the Weekend 

Participate or enroll in studies- We will have representatives from several studies happening for our MTM/CNM community attending the conference and there will be opportunities to participate or enroll in the studies that will move our community closer to clinical trials.

 

In Remembrance- At each conference, we designate time to cherish and remember the loved ones in our community who have passed away from MTM or CNM. 


Kids Activities- There will be kids activities provided to make sure they enjoy a weekend full of arts and crafts, music, games, and a repeat "Parade of Hats" that was a big hit in 2011. 


Young Adult Activities- There will be opportunities for older siblings and young adults affected by MTM/CNM to connect and go on outings together as a community across the street at the Mall of America. 


Family R & R- The Best Western has a newly renovated pool area with a zero entry pool that will be the place to be for some family rest and relaxation over the weekend.